For More Information...
Quick Links:
Basic Information About Lyme Disease
International Lyme And Associated Diseases Society (ILADS) Website
Evidence-based Guidelines for the Management of Lyme Disease
National Guideline Clearinghouse
U.S. Department of Health & Human Services
Lyme Disease and Associated Tick-Borne Diseases: The Basics
Document published by: The Lyme Disease Association of Southeastern Pennsylvania, Inc.
(15 pages, in PDF format)
Lyme Disease Videos
International Lyme And Associated Diseases Society (ILADS) Website
Here are Other Informative Websites We Have Found Helpful:
www.columbia-lyme.org - This site has links to studies, and an overview
of Lyme research. It also talks about recommended tests that you may want to consider. There is a great section
labeled "Frequently asked questions"
www.cwork.com - This a Lyme Disease Association site. Click the *Legislation* link, and click your state and see how legislators voted on US House Bill 1179, which seeks to provide vital education and funding for Lyme.
Sample scripts for letters and phone calls,etc. are listed.You can call or write to thank your representative or ask for their support for this vital legislation.
www.empirestatelymediseaseassociation.org - This is a great,
easy to navigate site. It has a complete list of Lyme symptoms (just scroll down this site's home
page), and lots of categories to click for more information.
www.lymenet.org - This site has links to other support groups.
www.lymepa.org - The Lyme Disease Association of Southeastern Pennsylvania, Inc. This site lists several good booklets to order, including Lyme Basics, and Quick Facts handouts. It is a good, usable and local site.
www.mentalhealthandillness.com - This site has a link to a neurological evaluation form titled "The Neuropsychiatric Manifestations of Lyme disease Assessment Form and Seronegative Lyme disease." This could be helpful for those seeking Disability or for talking to a Neurologist.
You will need Microsoft Excel or compatable software to open theassessment form from the Website. To open the assessment form in a Pdf format, click HERE.
www.timeforlyme.org - Newsletters available with great, up to date
articles. Good overview of action needed, and pending legislation.
Self Help and Support Services:
www.careforpa.org - This web site has information on advanced health care directives, sample forms, and other information regarding living wills. There is a detailed Question and Answer section that is a valuable resource for this kind of information.
www.caringbridge.com - CaringBridge® is a 501(c)(3) nonprofit web service that connects family and friends during a critical illness, treatment or recovery. A CaringBridge website is personal, private and available 24/7. It helps ease the burden of keeping family and friends informed. Patients and caregivers draw strength from loved ones’ messages of support.
www.cilbc.org - The Center for Independent Living of Bucks County - This social agency assists people with disabilities to help them live fuller lives.Their telephone number is (267) 752-7101. You may contact them for advice on how to get the services you need and to obtain services to which you may be entitled.
www.disabilitysecrets.com - This website contains information on how to file and win a disability case.
www.jevs.org - JEVS Human Services Supports for Independence provides free self-directed services that empower individuals living with disabilities and the elderly to maintain their independence by helping them manage the delivery of their care in their own homes and communities. They are able to hire their own personal assistance including a friend or relative.
Click Physical Disability under the Find Help section.
JEVS Supports for Independence is a provider of Attendant Care and Personal Assistance Services. For more information about JEVS Supports for Independence, download a two page PDF document titled "Be Independent in Your Own Home with the Power of Choice" by clicking <<HERE>>.
www.lymestrategies.com - This site offers a comprehensive listing of holistic treatments for Lyme Disease.
www.modestneeds.com - This group will provide financial help for basic needs, including Lyme related medical expenses. Check it out!
And... Several Other Sites We Recommend for Useful Information About Lyme Disease:
www.ilads.org - International Lyme and Associated Diseases Society
www.lyme.org - The Lyme Disease Foundation
www.lymediseaseassociation.org - Lyme Disease Association
www.lymerights.org - Lyme Rights
Remember to support these organizations if they help you!
